- Author Affiliations
- Address correspondence to: T. Backhouse Tel:
(+44) 1603 593319. Email: Tamara.Backhouse@uea.ac.uk
- Received September 18, 2015.
- Accepted December 9, 2015.
Abstract
Background: patient and public involvement (PPI) in research can enhance its relevance. Older care-home residents are often not involved
in research processes even when studies are care-home focused.
Objective: to conduct a systematic review to find out to what extent and how older care-home residents have been involved in research
as collaborators or advisors.
Methods: a systematic
literature search of 12 databases, covering the period from 1990 to
September 2014 was conducted. A lateral
search was also carried out. Standardised inclusion
criteria were used and checked independently by two researchers.
Results: nineteen reports
and papers were identified relating to 11 different studies. Care-home
residents had been involved in the
research process in multiple ways. Two key themes
were identified: (i) the differences in residents' involvement in
small-scale
and large-scale studies and (ii) the barriers to
and facilitators of involvement.
Conclusions: small-scale
studies involved residents as collaborators in participatory action
research, whereas larger studies involved
residents as consultants in advisory roles. There
are multiple facilitators of and barriers to involving residents as PPI
members. The reporting of PPI varies. While it is
difficult to evaluate the impact of involving care-home residents on the
research outcomes, impact has been demonstrated
from more inclusive research processes with care-home residents. The
review
shows that older care-home residents can be
successfully involved in the research process.
Key words
- © The Author 2016. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For Permissions, please email: journals.permissions@oup.com
